An online survey conducted by women’s health brand Evelyn among more than 1,000 UK women who self-identify as experiencing PMS or PMDD symptoms found that one in five (20%) turn first to social media platforms for support, while 15% go to Google.
By comparison, 12% said they would initially consult a GP, and 14% reported using NHS or other medical websites as their first source of information.
The findings come as online interest in Premenstrual Dysphoric Disorder (PMDD) continues to grow.
There are currently more than 89,000 posts on TikTok under the hashtag #pmdd. Google Trends data shows UK searches for “do I have pmdd quiz” are up 350% in the past year, while “pmdd symptoms and treatment” have risen 300%. Searches for “pmdd supplements” and “pmdd vs pms” are both up 110%.
The research was released ahead of PMDD Awareness Month this April.
Within the survey, 39% of respondents said they believe they have PMDD, a severe cyclical condition associated with significant mood and behavioural changes. However, only 28% reported receiving a formal diagnosis.
Many respondents reported uncertainty about what constitutes a diagnosable pattern and what information to bring to GP appointments, contributing to delays in clinical assessment.
The findings challenge the perception of PMS as primarily physical.
Respondents were more likely to report emotional, cognitive and behavioural disruption, including low mood, anxiety, irritability and difficulty concentrating. These symptoms were reported to affect work, relationships and daily functioning.
Phoebe Williams, founder of The PMDD Project, said: “The rise in women turning to social media before speaking to a GP should be a wake-up call. While growing awareness of PMDD online is positive, no one should feel they have to self-diagnose a serious cyclical mood disorder through TikTok videos or online quizzes.
“PMDD requires prospective symptom tracking across at least three cycles, yet many people are never told what to record or how to present that information clinically. This can delay diagnosis and access to appropriate treatment.
“The stakes are significant. Research from the University of the West of Scotland estimates around 824,000 people in the UK are living with PMDD, with many experiencing suicidal ideation, self-harm or suicide attempts. That is why better menstrual health education, improved professional training and clearer clinical pathways are urgently needed.”
Bonnie Hatcher, co-founder of Evelyn, added: “Women aren’t turning to social media because it’s easier. They’re doing it because the pathway to diagnosis isn’t clear. When symptoms are cyclical and disruptive but you’re not told what to track or how to present that information clinically, you look for answers wherever you can. This reflects a gap in guidance and access not a lack of trust in medical professionals.”
Nearly one in five women surveyed said they are currently doing nothing to manage their symptoms.
Experts estimate that PMDD affects 3%–8% of women of reproductive age and is often linked to heightened sensitivity to normal hormonal fluctuations in the luteal phase.
Recent UK studies, including those from the University of the West of Scotland, have highlighted wider systemic issues such as inadequate welfare support and gaps in GP training on menstrual mental health.
Calls for improved menstrual health education in schools and better professional training for healthcare providers are increasing, with the aim of reducing reliance on unverified online sources and improving access to timely, evidence-based care.